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Saturday, October 2, 2010


Last week, Jenna (my 1st grader) and I had the following conversation:

J: What does that ribbon on our van say?

Me: “Cure SMA”

J: I changed my mind.

Me: What does that mean?

J: I don’t want to cure SMA.

Me: [involuntary gasp] Why?

J: I like hitching rides on the back of their wheelchairs. I don’t want them to ever walk. I want them to stay in wheelchairs.

Not sure why I’m sharing this. Even if a cure came tomorrow I don’t think that it would be enough to make them ever walk--They’ll be in chairs for the rest of their lives. But that she identifies their chairs as a part of them and sees them as pluses instead of minuses? Priceless.


  1. She likes them just the way they are! Everyone else does too! I'm still holding out for the cure, including walking anyway.....