Last week, Jenna (my 1st grader) and I had the following conversation:
J: What does that ribbon on our van say?
Me: “Cure SMA”
J: I changed my mind.
Me: What does that mean?
J: I don’t want to cure SMA.
Me: [involuntary gasp] Why?
J: I like hitching rides on the back of their wheelchairs. I don’t want them to ever walk. I want them to stay in wheelchairs.
Not sure why I’m sharing this. Even if a cure came tomorrow I don’t think that it would be enough to make them ever walk--They’ll be in chairs for the rest of their lives. But that she identifies their chairs as a part of them and sees them as pluses instead of minuses? Priceless.