Humorous musings on life with three kids. I like to think that I'm funny, but I'm not really. So less-than-humorous musings on life with three kids, that's what this blog is. It's titled "...Bahamas, Bahamas, Bahamas..." because that's my mantra when things are getting rough around here. I've never been to the Bahamas, but I have promised myself that I will one day get there. Bad Day? "Bahamas, Bahamas, Bahamas!"
Dear Sis, you have been complaining that I don't post pics of our new house. I'd like to remind you that Tucson is only a 2 hour drive from Phoenix and you own a vehicle. If you need gas money, go ask Dad.
Without further ado:
Our billiards room. It's missing a candlestick, but if you look closely you're sure to find Colonel Mustard there somewhere. It's like a 'Where's Waldo' challenge--find him!
The main living area. Pool table room to the left, hallway to kids' bedrooms to the right. Kitchen table--when delivered--will also be off to the right.
J's new room. Purple, pink--you'd never know she's a girl, would you?
K's room--you'd never know he's a boy, would you?
Kids' bathroom. I don't know why I'm sharing this. I guess because it's one of the few completed rooms in the house. Enjoy.
Official move in time is this weekend. Please remind me why I perpetually choose to move in the freaking hottest, muggiest time of year?
Our new house is full of workers still, but we spent some time there today with the twins in their powerchairs. Grandpa's pool table was relocated to the new house over the weekend (thanks to the muscles of a whole crew of strapping young men) and now we have a whole slew of new opportunities for fun and games and occupational therapy!
(if you're reading this on Facebook, you'll need to click "View Original Post" to see the video.)
It's been 13 months, 5 insurance denials (at least), and three phone calls with the governor's office (!), but finally, the boy got his wheels. There are still some tweaks to be made in terms of his seating and joystick placement, but behold the beauty of coordinating boy/girl power wheelchairs:
And note that even photographing them from the back, Kyle is still on the left. Have you noticed that? I almost always put him on the left. I don't think I'm OCD or anything, but the boy being on the left is certainly a recurring theme with me. Also, I am left-handed. Also, the girl is left-handed. The boy is a rightie. I don't know what all this means--you pick it apart for me because I'm already confused after just writing this paragraph.
******************************************************************************** So, in case you're joining us for the first time, my twins just turned 3 years old and have a neuromuscular disease called Spinal Muscular Atrophy. They didn't show any symptoms until about 9 months of age, and it took 6 more months to get a diagnosis. SMA kiddos are super smart and social, but their bodies are weak. This is a degenerative disease. It is terminal. There is no cure. That bears repeating: My twins have a terminal disease, and there is no cure. But there are some nifty ways to make life more normal for them, and $65,000 power wheelchairs are one of those ways.
We also have a daughter about to start the first grade, and she does not have SMA--however, she does have what I like to call 'bout-to-be-terminal-sassyness. But my middle name is patience, so 'we shall overcome'. No worries.
Lauren got her chair in January, but Kyle's chair inexplicably got delayed 6 more months. The powerchairs are the reason why we're moving to a different house. We closed on the new house last week and hope to be moved in by the time school starts next month. We're also shopping for a wheelchair accessible van so that we can, you know, actually go places with their chairs. We're looking at shelling out well over $50k for such a thing, which completely blows, quite frankly. If I spend $50k on anything, it better include some sort of kick-ass tummy tuck for Mom, amiright?
So to those who stuck with me during this year-long ordeal, thank you. I know that complaints are not very interesting to read, but you hung in there and I high-five you for that. And my blogging frequency may be affected with the big move we're about to embark upon, but I hope to get back to the regular funny shortly after that. xo
p.s. the Jerry Lewis MDA telethon will occur Labor Day weekend, somewheres around September 5th, 2010. Watch the blog for some potentially interesting updates on this. Nothing is finalized yet, but let's say that the twins and TV cameras could be involved. Shhh, you didn't hear it from me.
Official move in time is this weekend. Please remind me why I perpetually choose to move in the freaking hottest, muggiest time of year?
