Kyle wanted to "run" the bases at Chase Field as his Make-A-Wish. Thankfully, the Arizona Diamondbacks let all the kids run the bases every Sunday. Now he gets to think about a different Wish!
Thursday, May 31, 2012
Wednesday, May 9, 2012
Humpty Dumpty. Again.
One year minus one day ago, and she fell in her high chair to the floor again. 364 days since the first time this happened. Firstly, the poor, poor girl. Secondly, this is the last time she will sit in this high chair. Nothing against the high chair, but a 30 pound kiddo repeatedly pushing her body against the high chair tray will eventually cause the high chair to tip over.
It's time--it's BEEN time--for a proper feeder seat for the twins. I admit, the absolute hassle with insurance approving this has been the primary reason why I haven't pursued this yet, but I'm pretty sure our insurance would rather these kids sit in thousand dollar chairs than pay the hospital bills when they tip over on the tile floor and break bones. That will not be pretty, or cheap.
The Tiger Serval HighLow seat--anyone have experience with this? I want something on wheels which can move up or down, and has a tray.
Also, proof that she is happy and healthy. But she REALLY needs a new feeder seat. The one above costs $2,000--does that make one iota of sense to anyone? It's not even mechanical! It's just a chair on wheels! Welcome to our world.
It's time--it's BEEN time--for a proper feeder seat for the twins. I admit, the absolute hassle with insurance approving this has been the primary reason why I haven't pursued this yet, but I'm pretty sure our insurance would rather these kids sit in thousand dollar chairs than pay the hospital bills when they tip over on the tile floor and break bones. That will not be pretty, or cheap.
The Tiger Serval HighLow seat--anyone have experience with this? I want something on wheels which can move up or down, and has a tray.
Also, proof that she is happy and healthy. But she REALLY needs a new feeder seat. The one above costs $2,000--does that make one iota of sense to anyone? It's not even mechanical! It's just a chair on wheels! Welcome to our world.
Friday, April 27, 2012
Catching up.
Yep, I realize that it's been 1+ months since I've updated anyone on the kiddos.
There's actually not a lot of good news. Well, I take that back--they are happy and healthy today, so that is wonderful. We enjoy days like these.
The good news is that flu season is over and nobody here caught the flu. Yay! So that means it's time to check in with all of their doctors. If there are procedures or surgeries on the docket, we want them to be scheduled for the summer break before the school year starts.
Good news is that they have no surgeries or procedures to endure this summer. The bad news is that they will eventually.
Our (much beloved) orthopedic surgeon reports that their spinal curvatures are at 41% and 51%. This is a significant increase from December. Increased time spent in their TLSO's each day is the first prescription. Spinal rod surgery is the next solution.
Our pulmonologist wants them on their bi-pap breathing machines at night. Am interviewing ad firms to find a tag line with which to sell the twins on wearing big masks on their faces--held in place by big, uncomfy straps--while said machine makes loud noises. Why does this have to be so hard?
Pulmonologist wants some baseline information on their cardiac systems, so we're adding cardiologist appointments to the docket.
Our G.I. team is dissatisfied with the twins' growth. Nearly one year after their g-tubes were surgically inserted, Lauren is fantastically thriving while Kyle is still struggling. Kyle is also regularly vomiting at night during his "slow drip" from his feeding pump when he wakes up with knee pain and cries. We're frantically trying to find a solution. In the meantime, the twins are nearly five years old and she weighs thirty pounds and he weighs twenty-six. Not good enough.
The neurologist is just in awe. I'm not sure he's ever experience such a loud exam room than when the Byrds are there to see him. We love our Dr. Bernes.
Our surgical consult regarding the g-tubes is still pending. We were supposed to visit Dr. Graziano this week, but Lauren was sick and junky and I didn't have it in me to haul them downtown and drag the 30-pound Cough Assist too.
I've also been meeting with their new school in regards to IEP's and all the accommodations they'll require as they transition to kindergarten.
That's what I've been up to, in case you thought you were busy.
There's actually not a lot of good news. Well, I take that back--they are happy and healthy today, so that is wonderful. We enjoy days like these.
The good news is that flu season is over and nobody here caught the flu. Yay! So that means it's time to check in with all of their doctors. If there are procedures or surgeries on the docket, we want them to be scheduled for the summer break before the school year starts.
Good news is that they have no surgeries or procedures to endure this summer. The bad news is that they will eventually.
Our (much beloved) orthopedic surgeon reports that their spinal curvatures are at 41% and 51%. This is a significant increase from December. Increased time spent in their TLSO's each day is the first prescription. Spinal rod surgery is the next solution.
Our pulmonologist wants them on their bi-pap breathing machines at night. Am interviewing ad firms to find a tag line with which to sell the twins on wearing big masks on their faces--held in place by big, uncomfy straps--while said machine makes loud noises. Why does this have to be so hard?
Pulmonologist wants some baseline information on their cardiac systems, so we're adding cardiologist appointments to the docket.
Our G.I. team is dissatisfied with the twins' growth. Nearly one year after their g-tubes were surgically inserted, Lauren is fantastically thriving while Kyle is still struggling. Kyle is also regularly vomiting at night during his "slow drip" from his feeding pump when he wakes up with knee pain and cries. We're frantically trying to find a solution. In the meantime, the twins are nearly five years old and she weighs thirty pounds and he weighs twenty-six. Not good enough.
The neurologist is just in awe. I'm not sure he's ever experience such a loud exam room than when the Byrds are there to see him. We love our Dr. Bernes.
Our surgical consult regarding the g-tubes is still pending. We were supposed to visit Dr. Graziano this week, but Lauren was sick and junky and I didn't have it in me to haul them downtown and drag the 30-pound Cough Assist too.
I've also been meeting with their new school in regards to IEP's and all the accommodations they'll require as they transition to kindergarten.
That's what I've been up to, in case you thought you were busy.
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