Catching up.

Yep, I realize that it's been 1+ months since I've updated anyone on the kiddos.

There's actually not a lot of good news.  Well, I take that back--they are happy and healthy today, so that is wonderful.  We enjoy days like these.

The good news is that flu season is over and nobody here caught the flu.  Yay!  So that means it's time to check in with all of their doctors.  If there are procedures or surgeries on the docket, we want them to be scheduled for the summer break before the school year starts.

Good news is that they have no surgeries or procedures to endure this summer.  The bad news is that they will eventually.

Our (much beloved) orthopedic surgeon reports that their spinal curvatures are at 41% and 51%.  This is a significant increase from December.  Increased time spent in their TLSO's each day is the first prescription.  Spinal rod surgery is the next solution.

Our pulmonologist wants them on their bi-pap breathing machines at night.  Am interviewing ad firms to find a tag line with which to sell the twins on wearing big masks on their faces--held in place by big, uncomfy straps--while said machine makes loud noises.  Why does this have to be so hard?

Pulmonologist wants some baseline information on their cardiac systems, so we're adding cardiologist appointments to the docket.

Our G.I. team is dissatisfied with the twins' growth.  Nearly one year after their g-tubes were surgically inserted, Lauren is fantastically thriving while Kyle is still struggling.  Kyle is also regularly vomiting at night during his "slow drip" from his feeding pump when he wakes up with knee pain and cries.   We're frantically trying to find a solution.  In the meantime, the twins are nearly five years old and she weighs thirty pounds and he weighs twenty-six.  Not good enough.

The neurologist is just in awe.  I'm not sure he's ever experience such a loud exam room than when the Byrds are there to see him.  We love our Dr. Bernes.

Our surgical consult regarding the g-tubes is still pending.  We were supposed to visit Dr. Graziano this week, but Lauren was sick and junky and I didn't have it in me to haul them downtown and drag the 30-pound Cough Assist too.

I've also been meeting with their new school in regards to IEP's and all the accommodations they'll require as they transition to kindergarten.

That's what I've been up to, in case you thought you were busy.

Lauren's Wish Trip

I apologize for my absence.  My old laptop died months ago and I finally got a new one, and trying to keep up with all my passwords has been challenging.  The internet is so hard sometimes.

As you may already know, we made it to Disney World and back last month.  I still have some loose ends to wrap up in regards to that trip, but you inquiring minds can check here for a recaps and photos.

If anyone wants details in regards to the accessibility of the Magic Kingdom or Give Kids the World, ping me.  The Disney World website is VERY detailed in which rides are accessible, but I am happy to elaborate if anyone has a specific question.

Additionally, Southwest Airlines featured Lauren's Make-A-Wish story on their blog.  Read it here.  Pretty cool, eh?

#SSfO (Such Suckers for Ollivander)

To catch you up:
Kyle is pooped out. (literally)  (mostly)
Lauren is well.  (mostly)  (still hoarse, but otherwise mostly okay respiratory-wise)
Jenna is living every 8 year old's dream:  to skip a week of school and hang at Disney World and the Wizarding World of Harry Potter.

Speaking of the latter, I have a few moments to finish uploading this amazing experience at Ollivander's Wand Shop at the Wizarding World of Harry Potter.  There is a long line to get in, but for good reason.

The set is pretty dark, but you may spy someone familiar despite that.  Witness the magic: