Friday Update

I can't stop posting videos now of the tiniest little things. Things they never would have been able to do pre-May 2009, but they do now. All because of the valproic acid med. I wish I could get some good footage of Kyle doing stuff, but frankly he's just not as cooperative as Lauren, and he also likes to act clueless as soon as the camera turns on. But I will make it my mission to catch him doing something soon.

Chris got to go to the Harry Potter exhibit in Chicago when he had some downtime this week. http://www.msichicago.org/whats-here/exhibits/harry-potter/ He reports that it was totally cool and wishes he had a ton of money to blow in the gift shop. He brought Jenna back a t-shirt and her own Golden Snitch. She's thrilled.

I seem to be all better, from whatever germs attacked me last week. Hooray!

I really am getting tired of this place... I want to go on a trip. Almost anywhere. Well, anywhere that is a little cooler than Phoenix--sorry, no Tucson or Vegas. A road trip to SoCal would be so much work, but it'd be worth it. Lego Land or Disneyland sound awesome right now. But it'll never happen, darn it. Chris can't get any time off of work. And I'm not about to do it by myself. Plus the logistics around finding a hotel suite big enough yet affordable is always a PITA.

The Families of SMA annual conference is in about 10 days, and so many of the SMA families we've met on the internet are going. It's in Cincinatti. Most of the families attending are driving, since their kids are too fragile for air travel, which means many of them are posting updates to their Facebook or blogs that they're starting to get packed up and mapped out, etc. I'm jealous. I wish we were going. It's just too, too far to go for us. I would never drive that far from Phoenix with the kids (just too much time in the car), and that's way too long for us to be on a plane with almost-2 year olds. The flight to Salt Lake City was 1h 15m and it was about the maximum we could comfortably do with them. Hopefully some year, the FSMA chooses a host city a little closer to Phoenix.

Happy Friday!

Lauren knows her ABC's--and you can almost understand her.

For your viewing pleasure.

Updates and goings on:

1. I have ramped up an addiction to Twitter.

2. We're planning the twins' second birthday party--we're going to keep it small this year, with only immediate family, and it will be a Sesame Street theme. Big surprise there. Did you know a Cookie Monster pinata costs nearly $20?? And it's not filled with anything!

A Whole Lot of Booty Shakin' Going on

Fun times today! We explored how much "fun" it can be to lay on tummies. Enjoy!

I'm sick again, unfortunately. I'm spending my time washing my hands until they're dry and practically raw. And we finally got the paperwork filed to begin the long process to procure the babies' wheelchairs. The rep will come to the house next month to take their measurements and show us a catalog. I understand it can take about 3 months to receive it after the order is placed. Anyone know of a local place which can convert a Toyota minivan to accomodate two powerchairs? I want an electric lift, not manual ramps. I do enough work as it is, no need to make me in charge of pushing heavy chairs up old-fashioned ramps. I guess we'll need a ramp for the house, too, so that they can enter and exit the front and back of the house.... along with wider doorframes.... hmm. This is a pretty significant change in our lives.

The new medication the twins were prescribed from Dr. Swoboda last month still seem to be working. Our physical therapist agrees with us that their stamina is improving, and their overall perkiness and morale along with it. Plus they're still eating really well--I'll take it! I love me some chubby babies.

That's all the update for now. TGIF!