I apologize for my absence. My old laptop died months ago and I finally got a new one, and trying to keep up with all my passwords has been challenging. The internet is so hard sometimes.
As you may already know, we made it to Disney World and back last month. I still have some loose ends to wrap up in regards to that trip, but you inquiring minds can check here for a recaps and photos.
If anyone wants details in regards to the accessibility of the Magic Kingdom or Give Kids the World, ping me. The Disney World website is VERY detailed in which rides are accessible, but I am happy to elaborate if anyone has a specific question.
Additionally, Southwest Airlines featured Lauren's Make-A-Wish story on their blog. Read it here. Pretty cool, eh?
Showing posts with label Lauren. Show all posts
Showing posts with label Lauren. Show all posts
Wednesday, March 14, 2012
Sunday, February 8, 2009
Today's update--no better, but no worse
Today went okay. Kyle isn’t getting better, but he isn’t getting worse. He started the day off in high spirits. We borrowed toys from the play room and he had fun sitting in his Boppy and playing with them. His fever is pretty high, when he has one, though, and he has phases throughout the day when he feels icky. But he still doesn’t require an IV, which is great news, and he hasn’t required oxygen since early this morning. And we found out that he can order unlimited ice cream cups, so he’s been enjoying that!
Lauren, too, isn’t getting better but isn’t getting any worse, either. She is struggling to keep herself oxygenated still, and she spends most of the day sleeping with her bipap machine or getting her chest percussion/Cough Assist treatments. The great news is that she hasn’t had a fever in about 48 hours, so maybe just maybe the very worst is over. She still has lots of gunk in her lungs, though. I would venture to say that she probably has four more days to spend here. Maybe just two days, if we have all of this equipment delivered to our house in time.
Lauren hates getting her treatments from the respiratory therapists. Every three hours, they spend 45 minutes beating her lungs with the chest percussion, doing 5-7 rounds on the Cough Assist, and then deep suctioning the secretions. She now knows who the RT’s are and the minute she spies them in the room, she cries, “No, no, all done, all done!” It was funny the first time, and then just sad. She’s such a sweetie. Kyle has started some Cough Assist therapy, too, and he has tolerated it so far surprisingly well.
Right at this minute, Kyle is feeling cruddy in his bed. He’s watching his Ocean Wonders aquarium fishies that we attached to his bed rail, grasping the ribbon of his Pooh bear balloon tightly and trying to take a nap while he waits for his fever to go back down (he was just given some Tylenol). Lauren is sitting here next to me in her bed, wearing her new (and joyously smaller!) bipap mask while she plays with some blocks and books and watches Stuart Little. Her eyes are shining and bright and her color is good. Sort of the opposite of Kyle right now, but these roles have been reversed all day, so it was about time that the girl got some happy time.
Chris was supposed to start his new job tomorrow, so we hope that they’ll allow him to defer one week without firing him before he starts. Like he needs the added stress of starting a new job amid all this drama at home! What timing. Oh well.
More updates tomorrow.
Lauren, too, isn’t getting better but isn’t getting any worse, either. She is struggling to keep herself oxygenated still, and she spends most of the day sleeping with her bipap machine or getting her chest percussion/Cough Assist treatments. The great news is that she hasn’t had a fever in about 48 hours, so maybe just maybe the very worst is over. She still has lots of gunk in her lungs, though. I would venture to say that she probably has four more days to spend here. Maybe just two days, if we have all of this equipment delivered to our house in time.
Lauren hates getting her treatments from the respiratory therapists. Every three hours, they spend 45 minutes beating her lungs with the chest percussion, doing 5-7 rounds on the Cough Assist, and then deep suctioning the secretions. She now knows who the RT’s are and the minute she spies them in the room, she cries, “No, no, all done, all done!” It was funny the first time, and then just sad. She’s such a sweetie. Kyle has started some Cough Assist therapy, too, and he has tolerated it so far surprisingly well.
Right at this minute, Kyle is feeling cruddy in his bed. He’s watching his Ocean Wonders aquarium fishies that we attached to his bed rail, grasping the ribbon of his Pooh bear balloon tightly and trying to take a nap while he waits for his fever to go back down (he was just given some Tylenol). Lauren is sitting here next to me in her bed, wearing her new (and joyously smaller!) bipap mask while she plays with some blocks and books and watches Stuart Little. Her eyes are shining and bright and her color is good. Sort of the opposite of Kyle right now, but these roles have been reversed all day, so it was about time that the girl got some happy time.
Chris was supposed to start his new job tomorrow, so we hope that they’ll allow him to defer one week without firing him before he starts. Like he needs the added stress of starting a new job amid all this drama at home! What timing. Oh well.
More updates tomorrow.
Sunday, February 1, 2009
"Daddy!"
It is endlessly amusing to me that Lauren will call anything Daddy. And I don't mean she goes about it casually. No, no. She tenses her whole body, takes a deep breath, smiles huge, and squeals clear as day, "Daddeeeeeeee!" This is what she has done when she sees:
^strange men at the mall
^a ceiling fan
^her mother
^her grandparents
^her sister
^a magazine with Barack Obama on the cover
^the Lerner & Rowe TV commercial (local accident/injury lawyers)
^a block of cheese
^balloons
^Zoo Lights
^the priest, during mass (yeeps!)
Basically, she hysterically cries out, "Daddy!!!" at anything she likes. Including her actual father (thank goodness). And it will never not be funny to me that she does this!!
^strange men at the mall
^a ceiling fan
^her mother
^her grandparents
^her sister
^a magazine with Barack Obama on the cover
^the Lerner & Rowe TV commercial (local accident/injury lawyers)
^a block of cheese
^balloons
^Zoo Lights
^the priest, during mass (yeeps!)
Basically, she hysterically cries out, "Daddy!!!" at anything she likes. Including her actual father (thank goodness). And it will never not be funny to me that she does this!!
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